Spreading Awareness to Help Others with Lyme Disease
I’m starting this blog to spread awareness about Lyme disease and its “friends” — the various co-infections that ticks can spread with a single bite. From babesia to bartonella, from anaplasma to rickettsia. All just so much fun.
One year ago, I knew almost nothing about Lyme, and absolutely nothing at all about its often more dangerous co-infections. I’ve lived in California – both north and south – my entire life, and love the outdoors. When hiking, I might have taken a quick look at my legs for ticks, but since I’d never seen one, I wasn’t very thorough with my checks. I figured that if I found a “bull’s eye” rash anywhere, I could get some medicine, and never look back.
But that’s patently false. A bull’s eye rash appears in 50% OR LESS of Lyme cases. And there is no “quick fix” for Lyme. If you’ve been bitten in a Lyme-endemic area, DO NOT WAIT FOR A RASH. Get treatment immediately – within one or two days of the bite – and treat with high dosages of doxycycline for 6 weeks. Do not play with this. If you doubt me, run a Google search for “chronic Lyme disease.” Don’t read anything posted by the Centers for Disease Control (CDC) – their information is decades old, and for some reason, their input is often wrong. There are theories abounding about WHY the CDC has not updated its guidelines about Lyme disease and its co-infections. Regardless of the WHY, the important thing is that you must look elsewhere to get the most up-to-date treatment and diagnosis facts about tick bites.
Where should you look?
There are dozens of prestigious organizations with good information. Here are some of the best:
- ILADS (International Lyme and Associates Diseases Society) – Go here to find a doctor near you who is fully educated about Lyme and its co-infections: http://ilads.org/
- LymeDisease.org – Excellent and up-to-date information about Lyme and co-infections: https://www.lymedisease.org/lyme-basics/lyme-disease/about-lyme/
- MDJunction – Search the Lyme disease forums for great answers to questions about Lyme and co-infections: http://www.mdjunction.com/lyme-disease
- Parents of Kids with Lyme on Facebook – Another excellent place to get feedback from people who have experience with Lyme disease: https://www.facebook.com/groups/ParentsofLyme/